Daria’s Funeral Service

Yesterday was Daria’s funeral service. At the funeral home, the family gathered around in the eating area an hour before the start of her service. We spoke softly to each other and shed a few tears for Daria and for each other. The funeral director then took me to the chapel area to show me Daria’s urn, her large framed picture and flower arrangement.  I silently said oh Daria to her picture and cried and stayed a while. 

I didn’t notice walking in, I thought the place was empty, but there were two young ladies sitting in one of the pews. When I turned to leave, they both got up and tearfully introduced themselves and offered their condolences. I told them that I knew who they were. Daria had given both of them their start in their HR careers. Daria talked about them often, followed their progress and after leaving that job for another, they continued met regularly for dinner.

That was my Daria. Thank you to all those that came to Daria's service and offered their condolences to the family and myself.

Don

Below is the link to the picture montage that was shown at her service. When you get there, click on Daria’s picture to start the series rolling.

http://obits.dignitymemorial.com/dignity-memorial/obituary.aspx?n=Daria-Maluta&lc=3721&pid=148065092&mid=4526284&locale=en-CA

or Google, Memories Funeral Home Edmonton AB

Daria’s Eulogy by her brother-in-law Peter

   Daria Maluta passed away January 22, 2011 at the age of forty-nine, two days before her fiftieth birthday. She will be sadly missed, but lovingly remembered by her husband Donald, her mother Jennie, her sisters Maria, Anne, Olga, Diane, and her brother Steve.  Daria had been predeceased by her father Roman Maluta in 2001.

    Daria was born on January 24, 1961, and grew up on the family farm near Glendon Alberta, where she attended school. Upon graduation from high school, Daria moved to Edmonton where she was employed by Canada Safeway for approximately twenty years. It was during this period she became interested in business management and human resource development. In 1995 she studied Front End Management offered by Cornell University, and in 1998 she studied Management Development offered by the Faculty of Extension at the University of Alberta.  

  During this period, Daria was also a member of Toastmasters International and regularly volunteered at the Youth Emergency Shelter in Edmonton. In 2003 after having been diagnosed with breast cancer, Daria continued her volunteer work and participated in a Cure for Cancer marathon held in Seattle Washington.

  In 2004, she began her studies towards a Human Resources Certificate, offered by the Faculty of Extension, at the University of Alberta. At this time Daria also decided to make a career change, and she was able to obtain employment with Edmonton Northlands with their Human Resources department. In 2007, Daria was hired by the Eveready Income Fund and employed as a Human Resources Generalist, she remained in this position until her illness caused her to retire.  

  However Daria refused to totally give up her studies in Human Resources and was able to obtain a Human Resources Management Diploma from Grant McEwan University in 2010, despite only being able to attend on a part-time basis while undergoing chemotherapy treatments for her illness.

    In 2000, Daria at the age of thirty-nine, was diagnosed with breast cancer. She endured radiation, chemotherapy, and surgery and was cancer free for eight years, at which point the cancer returned. After her chemotherapy treatments to try to force the cancer into remission, Daria volunteered to participate in the phase 1 clinical trials for the new experimental drug Brivanib, which it was hoped could help future cancer patients. 

  She became a spokesman and activist for those also suffering  from metastatic cancer, and traveled to our nation’s capital to speak to members of parliament about the need for greater cancer awareness and treatment. In this capacity, she set up her internet blog, ( Daria-Living with cancer.)  which allowed her to chronicle her treatment, share her feelings and inspire and encourage others around the world, suffering from this disease. 

 Closer to home Daria continued to volunteer and help others, through the Breast Cancer Network she provided counseling to others on a daily basis. Daria not only shared her busy life with her beloved husband Don  and her dog Daisy, she developed a worldwide network of friends through her blog and Facebook entries, who she continued to inspire daily.

Daria's funeral service at Memories Funeral Home

If you are able, please attend Daria's funeral service at Memories Funeral Home 13403 St. Albert Trail, Edmonton AB Canada, Thursday January 27 at 1:00PM. Refreshments will be served afterwards.

If you can’t make it, I will post the eulogy and the picture montage shown during the eulogy so you will have a better sense of Daria’s personality and the things she accomplished in her life.

Thank you,

Don

Daria Maluta has Passed

Daria Maluta passed away last night at 04:34 on Jan 22, 2011 at the Royal Alexandra Hospital here in Edmonton AB. I was by her side and was able to kiss her goodbye several times during the night and then watched her slip away quietly in her sleep.

I’m a little too emotional to talk about anything else right now. Meeting right away with family at her mother's place and I’ll post more later.

Don

Daria Rests Comfortably

Daria is resting comfortably but is slowly losing touch. We are waiting for an opening at hospice care about a block away from the hospital. The caregivers say that should happen around Wednesday of next week.

Don

Daria is no longer able to post to her blog

Don here. This is the most difficult thing I ever have had to say…. Daria is no longer able to post to her blog.

Yesterday around noon, I brought my love to the hospital by ambulance. After some tests by the ER doctors, Daria asked for medication to control pain. It’s difficult for her to speak right now but she still knows what’s going on. 

This morning and every morning, I’ll print out your comments, take them to Daria’s bedside and read …. I think tearfully … each one out loud. Your words mean a lot to both Daria and I, they will be very comforting to hear.

In the next day or so I’ll know more and post.

Don

Resting at Home

I’m out of the hospital after my ERCP and resting at home, drinking fluids and going to the bathroom. The doctors placed a few stints to get bile moving from my liver.

My belly is really full of gas and I’m not feeling too good right now.

Thank you for all your comments.
D.

ERCP Procedure Today

Today I’m going into the hospital for an ERCP Procedure. I’m hoping the Doctors finds some bile duct obstruction that will help explain some of what is going on. And I'm hoping everything goes well and I will be home safe and sound by this evening. 

If I’m not up to blogging tomorrow, I’ll be asking D to fill in some of the details of how I’m doing.

Feeling Melancholy

Since Thursday’s appointment with my Onc I’ve really been doing a lot of thinking. It’s made me very melancholy. It makes me wonder how much time l have left on this earth?

When I look in the mirror not only am I gaunt but I’m looking Jaundice too. I don’t feel like I’m recovering … I feel like I’m deteriateing.

I am feeling ever so rushed to get things done knowing at any time I could be rushed to the hospital never to come home again. And then there are times I think I might have months to live.

It’s a confusing weird place to be in.

Hopefully Some Good News Next Week

Friday at 8 am I was at the clinic at X-ray … in for an ultrasound of my chest and abdomen. The goal of the technician was to find large pockets of fluid that could be drained. She found one area on my back near the bra line and one was on the left front side near the groin area. They marked some areas on my body, took some pictures and then it was off to see my Onc who was going to do the two procedure … the Thoracentesis and the Paracentesis.

Eventually he took out 750mls of fluid out from around my lung area and another 850mls out from around my abdomen area. I’d have to say it went very smoothly with no pain … maybe a bit of discomfort.

Even after the procedure, my belly is still quite swollen but much of the pressure is relieved. I still cough a bit and my ears feel like I’m under water. I’m hoping it’s just some time for everything to settle in.

While doing the procedures, the Onc repeated … we are not stopping this study till we find out what’s wrong with you. Music to my hears …

The final procedure being done is an ERCP which will be done by a gastrologists. He is looking for some liver duct blockages that can be fixed. Anyways, got a call late Friday to come in on Monday. Wow I am very excited. Hopefully we finally have some solid answers.

Sharing Some Bad News

I guess we’ll just cut to the chase … the Trials nurse walks in and says … oh your face … I said it’s yellow … then she looks at my belly … oh it’s bigger … yes I said, trying to hold back the tears. She proceeded to tell my liver functions numbers were up once again. We looked over the numbers. Ok a tear came down. A little discussion, then I said and how many weeks can I be off Brivanib before I’m kicked off the study? She said four. More tears. Next week is considered my 4th week and there is no possible way those liver function numbers could come down in one week. So I’m off the study, I said … yes, said the nurse.

We spent some time talking as she tried to console me. I asked how long do I have … she said the Onc would come in to talk to me about that. My mind was racing now, how am I’m going to tell D, my family.

Then the Onc came me. First he said the CT scan was really good. The tumors on the liver are smaller and looking great. But the liver function numbers are not great. He said, I’m thinking the reason your liver function numbers are up is because you may have a plugged bile duct in and around your liver. And your coughing is likely because you have a swollen belly which is putting pressure on your lungs which already have fluid around your lungs and are making you cough.

So what is the plan … drain the fluid around the lungs, drain fluid from the abdomen and try and find a plugged bile duct and then unplug it.

In the end, I walked out not having much solid information except that tomorrow morning at 8:00am I have to be at the clinic for one of these procedures.

BC Friends and Meals on Wheels

Yesterday was our breast cancer friends coffee group. I have to say, with the weather being so cold, the roads being so slippery and my energy being so low … I didn’t really feel like going. It just seems to be too much of an effort to do much of anything. Finally when D offered to drive me, I realized I couldn’t say no and I’m so glad I didn’t. Conversation wise I wasn’t very chatty but it sure was nice just to see the ladies. A, had made copies of our Christmas Party and Irm brought pictures of her sweet grandchild. Those pictures alone helped brighten the day.

After about an hour and half I decided that was enough of an outing for me so I called D to come pick me up. On our way home, we stopped at Meals and Wheels for a few different frozen samples. I’ve never tried them before but was desperate for a change in food. I am so done with takeout, packaged food, canned food … white rice, white bread, bananas and so on.

I ended up opening a packaged dinner for last night … it was a bit bland but maybe that is exactly what my stomach needs right now. The food went down real well with no digestive issues, however, I ended up get up numerous times for washroom breaks. I have to keep reminding myself … SMALL PORTIONS ONLY!!

CT Scan Part 2

Ok so I’m the last person to be called in for me CT scan and the only thoughts on my mind were don’t throw up, don’t lose controls of your bowel and don’t cough during the scan itself.

One of the technicians can in and started some small talk and said something like just go lay down on that scanner bed. I wasn’t feeling very strong and balanced so I just sat down waiting for someone to help me lay back. I had visions of landing on the floor.

She helped lay me down and then went over about the 20 or so questions … could you move your head higher, would you move your hips to the left, have you had this test before, did you have any reactions and so on. Fortunately, I was quite familiar with the procedure so I only listened to the odd word here and there.

My only concern was to stay calm and not have any mishaps, and my biggest worry at that moment was my coughing. So I mentioned to her, that I had this coughing problem … oh no you can’t cough during the CT scan … ya I kinda figured that. She gave me some helpful advice  ... when we tell you to breathe in, just take a shallow breath.

So how the CT scan generally goes … someone will say you to you … ok, now take a deep breath and hold it … seven seconds later, they say, ok breathe normally. They do these four times while the big circular tube goes around you. This test is about ten minutes and at mid point they inject you with some sort of contrast media. I took the techs advice and it seemed to be fine.

Finally, I’m done … it’s off to the change room to change into my street clothes. I was half way pulling up my pants when I got this serious urge to go to the washroom. I grabbed my purse and ran for the toilet … sure enough another serious bout of diarrhea. I finished dressing and phoned D to pick me up. I asked him to put and old blanket on the passenger’s seat of the car just in case I had an accidental bm on the way home.

Fortunately, no accidents in the car …. But my diarrhea did continue into the night and then most of the next day.

CT Scan

Yesterday I had my CT scan. I was feeling a bit weak and nervous. My stomach was feeling bloated and I was worried I would not be able to drink the two liters of the contrast cocktail they wanted me to.

Well no sooner did I fill out the paper work, and change into a gown … my name was called. The next order of business was to get an IV. Two nurses and three pokes later, success! Off to the waiting room with my two liters of contrast cocktail. I had 45 minutes to drink it.

The place was pretty full so I got a chance to talk to a couple of fellow cancer patients. A young man and his wife were sitting there and were noticing everyone was getting warm blankets from the heater. It didn’t take long for them to figure that out, so as the wife get’s him a blanket, I said … a person sure does get cold after drinking that cocktail. He said you know I used to always be warm until I had my surgery and now I’m always cold … interesting I thought.

Anyways, as time went on, I continued to drink and drink and drink. The fluid felt like it was just sitting in my belly and not moving through the system. I kept looking at the garbage can beside me thinking that might be where these drinks were going to end up.

I was now an hour and half hour later and I was the last patient waiting for a scan. There was one other patient who needed some medical attention on a leaky surgery site. The nurses took her into another room to help her out.

While this was happening, I thought, well I’d better go to the washroom one more time hoping to empty my bladder and relieve some of the pressure to my abdomen. Well thank goodness I did go to the biffy because I ended up having a serious bout of diarrhea. As I came out of the washroom, I once again ran into the lady that needed the dressing changed.

She comes by, cane and all and says, have a nice day … in a very cheery upbeat voice. I said same to you. She noticed my cough and said is that a cold or cancer related. Cancer related. Oh she said that coughing sure can be sore on the ribs. I said it sure is. After a bit more chit chat … her last words to me were …

All the best to you and keep your head up high.

My Coughing

I wanted to share with you how my coughing has been going. D says I’m coughing nowhere near what I used to.

It may be because I spent the last two days in bed just lounging in my pjs and that may have kept my coughing down. It was a very restful time and I loved every minute of it.

However, I did notice a couple of new coughing triggers this weekend that I’d like to share with you. First the hot moist air in the shower made it hard for me to breathe, so much so it forces me to stick my head out behind the shower curtain to get some cool dry air. I did that a couple, three times during the shower.

I had another situation of where high humid in the air was causing problems for me … D was cooking spaghetti for supper. I came to have a look at it and started coughing uncontrollably. I left the room and went back to the bedroom and laid down to relax and calm myself. That is the first time that humidity from cooking has done that to me.

And finally, I’ve mentioned this before … any shift in position of my body in bed will cause coughing. There must be something in or around my lungs that shifts when I move. So to try and minimize it I sleep on my back for as much of the night as I can with the hope I don’t stir things up.

Fear of BC Recurrence~Video

Here is a five minute video where Dr Anne Moore, a leading breast oncologist, shares important information to help breast cancer survivors cope with the fear of recurrence.

Dr. Anne Moore, is Professor of Clinical Medicine at the Weill Medical College of Cornell University and is Attending Physician at The New York Presbyterian Hospital where she chairs the Breast Cancer Committee.

How to cope with fear of breast cancer recurrence

Heart Test and Bone Scan

Yesterday was a bit of a long day at the clinic. I got there for an 11 am appointment … my Echo-cardiogram. Basically, the technician spends most of her time doing an ultra sound of my heart, taking pictures and recording this and that. Here and there she would ask me some general questions about my heart history … Have I had any heart problems? Experienced any fluid around my heart? Have I ever been on high bp medication? Experienced any shortness of breath? The appointment was a good 45 minutes.

I thought I’d share this three minute video of an Echo-cardiogram with you.

My next appointment was a bone scan. First order of business was to have the contrast injected into my vein. Two nurses and two attempts later, we found a good vein … success I was starting to light up on the inside. It takes a good hour and 45 for the contrast to circulate through the body so the technician said to come back almost two hours … and oh yes, she said, try and drink lots of coffee or whatever so that you can pee twice before then. Argg I go … I have so much trouble putting down fluids. I said I’d do my best.

Since I only had one tablespoon of oatmeal that morning, I thought I’d go to the cafeteria and picked up a fresh salad with some grilled chicken pieces and a small juice. I could barely finish it before indigestion set in. The best I could do was one pee.

I came back for my bone scan and a half hour later I was all done.

It was 3:30 and I was anxious to call D. I was so ready to go home and put my feet up.

More Waiting Required

Well my appointment with the Trials Nurse and Onc was not as I had hoped. Not only had my liver functions numbers gone up again but they doubled since last week. All the nurse could say is that we’d have to wait and see. So no Brivanib this week.

Still in a bit of shock I asked the nurse what we could do about my cough saying that maybe an inhaler was in order. She said she’d ask the Onc. A short time later, she walked back in with a prescription for an inhaler. Two seconds later, the Onc walks in and checks my breathing, taps my back for fluid levels around my lungs and then said he was going to send me for a chest x-ray immediately. Maybe a chest x-ray would give us some ideas as to what the problem is. Both the nurse and the Onc left.

A couple minutes later, the nurse comes back in with a list of my regularly scheduled scans and tests. Tomorrow I have heart tests plus a bone scan. Monday the 10th I have a CT scan and Thursday the 13th I have blood work and see the Onc to go over the results. The nurse then said I should go have a seat in the waiting room and she’ll get a requisition for a chest x-ray.

A few minutes later, I was on my way to X-ray. I changed into a gown and within five minutes my x-rays were done.

I gave D a call to pick me up … his first question was … well how are things? I gave him the news about the blood work. Darn it, he says. Then he asks if the Onc commented on whether the coughing was due to the fluid around my lungs. I said, no and in fact very little was said about anything. Oh, he goes … my thoughts exactly.

Off To See The Onc

Today I’m off to the clinic for blood work and to see the Onc. I’m sure hoping my liver function is better so that I can go back on Brivanib. 

Last night I prepared my list of items I wanted to talk to the Trials Nurse and the Onc about.

Firstly I want to talk to them about this awful coughing I’ve had for the past week or so. I have to find a solution. It’s exhausting and I just want to cry when I think about it. The mornings start out pretty good but somewhere around the late afternoon I start coughing and it only worsens into the night. Phone calls can be especially difficult … I become short of breathe and cough like crazy.

Secondly, I wanted to talk to the Onc about my bp medication. Last week his orders were to keep reducing my bp meds until I got a top number of at least 95. I’m not sure that meant stopping the meds completely tho … but I did. My bp this morning was 106/75 and being that my bp monitor is about 5 points higher than the clinics, I figure it’s pretty close.

The third item that’s been bugging me for quite some time now but I haven’t mentioned is … since about spring, every few months or so I gain about an inch on my waist … it seems to be expanding. I've always thought it was swelling from the cancer but since I’ve been on Brivanib and the tumors are shrinking  I was hoping my belly would too … not.

Look Good Feel Better Workshops

I am often surprised when I run into one or two cancer survivors that are not familiar with the Look Good Feel Better workshop. It’s very uplifting and you always walk away with a bag full of goodies.

So here is a bit of information about the program as per their web site.

At Look Good Feel Better, we believe that an improved self-image can help lift women's spirits and nurture hope, helping them face their illness with greater confidence. We like to call it a 'makeover for the spirit'.

Launched in 1992 by a charitable foundation of the Canadian Cosmetic, Toiletry and Fragrance Association (CCTFA), Look Good Feel Better is Canada’s only cancer charity dedicated to empowering women to manage the effects that cancer and its treatment have on their appearance, and often on their morale. Over 100,000 women have been helped through our workshop and services.

At the heart of Look Good Feel Better is a free, two-hour hands-on workshop in which women whose appearance has been affected by cancer and cancer treatment learn how to look and feel a little more like themselves again. Guided by experts through our Signature Steps, they master simple cosmetic techniques, explore hair alternatives, and learn about cosmetic hygiene, nail and skin care. Participants take home a complimentary kit of cosmetics and personal care products that are generously donated by the member companies of the CCTFA.

The Look Good Feel Better workshop brings together women with cancer in a safe and supportive environment where they can share stories, insights, laughter and, yes, sometimes tears.

Explore their website to learn more about Look Good Feel Better. If you’d like more information, please call 1 800 914 5665.

For workshop dates in Edmonton ... please click here for the locator.

Feeling the Effects of all the Holiday Celebrations

I’ve been really coughing a lot over the past week. I’ve used Halls cough drops which have allowed  me to breathe easier and I've used Ativan to calm me down. I've been taking ½ of an Ativan at night and the same amount during the day … for the past four days and nights.

This morning I woke up coughing abruptly unable to catch my breath. I ended up going into a dark quiet room all by myself trying to calm down. Sure enough I eventually caught my breath.

I’m thinking the last few weeks have been more than too busy for me. Between the Christmas Festivities, travel and the changes to treatment and side effects, I’m worn out. Not only am I physically worn out but I’m emotional worn out … I’m feeling anxious, frustrated and weepy.

This morning I called my psychologist at the clinic and booked in an appointment to see her. I’m hoping she can help me with a new plan of action … something that will put me back on track to a more calmer me.

Become a Breast Friend!

Edmonton's breast cancer survivor dragon boat racing team is recruiting new members for the 2011 season. Any woman from Edmonton and area who have had a diagnosis of breast cancer and have completed treatment are eligible to join them. They are from every walk of life, and have varied fitness levels. Their goal is to prove that women can lead full and vigorous lives after surgery and treatment for breast cancer. Their motto is: "Awareness and hope in a dragon boat!"

Training begins in the gym in February. They also practice in pool boats in April. Then they start training on the river by mid-May. Their training is led by head coach and trainer Dot Laing, who has more than 25 years of experience in the fitness field. The dragon boat racing season goes from June to September.

Last year Breast Friends crews entered 7 festivals, including the Edmonton Dragon Boat Festival which is held every year in August. They won gold medals in the breast cancer divisions at 6 of those festivals, and their goal is to be just as strong next year!

Breast Friends will hold an information meeting for potential new members on Thursday, January 6, 2011 at 7 pm in the Zane Feldman Theatre at the Cross Cancer Institute. 

Please RSVP to info@breastfriendsedmonton.org. The deadline for new memberships is January 15, 2011. For more information, visit their website, www.breastfriendsedmonton.org

Under the Night Sky – Wellspring Shines

As per their website...

Under the Night Sky – Wellspring Shines is on Saturday, February 5, 2011 at The Enjoy Centre, St Albert, AB. 100% of net proceeds from the event will go to the Wellspring Edmonton Campaign to build and operate our facility, so that we can reach our goal and open our doors by 2012!

Wellspring Edmonton will provide a wide range of cancer support programs to serve the emotional, social, and informational needs of people living with cancer, and those who care for them.

Here is a bit about the evening …

Twilight - the reception (6:30 p.m.)

The setting is inviting – fireplaces glow, the lighting sparkles and the music is lively. As guests mix and mingle they will be treated to elegant hors d’oeuvres and tantalizing drinks . . . just a taste of the indulgences that await them at Nightfall.

Nightfall - the dinner (7:30 p.m.)

Guests enjoy a magnificent meal while celebrating the story of Wellspring Edmonton. Throughout Nightfall, guests will be treated to elegant music and entertainment. It will be a party like no other.

Midnight - the after-hours (9:30 p.m.)

After-dinner drinks, espressos, and the ultimate in desserts will be served in this “after-hours” spot, with a background of intimate jazz.

Throughout the entire evening, selected pieces of high-end art, each with a special connection to Wellspring, are offered by auction. The evening comes to a close and guests leave, feeling enriched, indulged and informed – and looking forward to next year! 

For more information click here and for tickets click here.

Trouble with Coughing

I’ve been feeling pretty good this past week except for this silly cough I’ve got. It’s been off and on and really started to come on the day before seeing the Onc on Wednesday the 29th. I was ok in the mornings but the afternoons seemed to be so much worse. We, the Onc and I didn’t really discuss it too much because I just thought it would flare up and then disappear however that didn’t seem to be the case.

Anyways, as we were visiting family and my coughing had become annoying and distracting so much so that my brother-in-law came out with some Halls Cough Drops. I sucked through about five of them … what a relief that was. I could sure breathe more clearly and easily.

Last night I took half an Ativan hoping to calm things down and may get some good sleep. In the middle of the night I woke up a bit agitated so I popped a cough drop in … once the cough drop dissolved, I was able to fall asleep quit quickly.

Today is a new day and once again, I feel good and am doing next to no coughing. I’m thinking the Halls from yesterday are still doing their thing.